Join the DARE UK Public Advisory Group

DARE UK (Data and Analytics Research Environments UK) is inviting members of the public to join its Public Advisory Group to collaborate and provide advice on programme activities.

NIHR Patient Engagement in Clinical Development Service Opportunity – Document Review – Breast Cancer

The National Institute for Health and Care Research is pleased to share an opportunity for members of the public who have lived or caring experience of breast cancer to be involved in the shaping of a commercial trial. They are working with a company to help them improve their planned research. Our partner is looking for people who are willing to read through draft documents that have been prepared for people interested in taking part in the study and giving feedback on how clearly the information has been written and presented. This will help them to design a study that is focused on the needs of the patient, their family, and their community.

Experts by experience: what can we learn about recovery in psychosis from those who use mindfulness?

The University of Liverpool are looking for volunteers to take part in an individual online interview exploring the process of recovery from psychosis and how mindfulness has been used in the recovery journey. As part of the interview, you will be asked to bring items which have some personal significance to your recovery experiences with you. This could include photographs, art, or objects. They hope this research will help them to gain more information about how recovery can be promoted for those experiencing psychosis.

Become an external committee member for UCL’s Research Ethics Reviewing Committees

Research ethics is fundamental to University College London (UCL)'s mission as a world-class institution dedicated to the continued pursuit of original knowledge and scientific advancement to benefit humanity and the world of the future. Research ethics committees play a central role in ensuring that research meets the highest standards of transparency, accountability and ethics, to safeguard and empower participants. They are currently seeking volunteer external members to join two central reviewing committees. 

Cancer Research UK Cancer Data Patient & Public Community

The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, they work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.

Shape an upcoming study on a new vaginal treatment for miscarriage prevention

Calla Lily Clinical Care is a UK-based women’s health company developing a new way to deliver vaginal progesterone – a hormone treatment used to help prevent miscarriage. They are preparing for a small trial to test their device, called Callavid, to see if it safely delivers progesterone into the bloodstream, and how it compares to the current option (Cyclogest pessaries).

The Friendship Bench – London project

The project focuses on adapting the Friendship Bench Zimbabwe, a successful, community-driven mental health initiative originally developed in Zimbabwe, to better support Black communities in London. The goal is to create a culturally responsive, accessible mental wellness programme that meets the specific needs of underserved communities.

Research into disability and wellbeing in London

Real is a Disabled People’s Organisation carrying out research into D/deaf and Disabled people’s quality of life across London using a research tool called the ‘Personal Outcomes Scale’. This explores what is important to you in different areas of your life, for example your social inclusion, health, and happiness. Over the two-year project, Real will interview 1000 people.

Survey on experiences of sexual misconduct from powerful professionals

This study is conducted by the Powerful Perpetrators research group at the University of Bristol. It explores the nature and prevalence of sexual misconduct and abuse perpetrated by UK professionals against adults. It also looks at the professional regulatory and employer disciplinary mechanisms used to investigate and sanction their behaviour, with a view to improving how these cases are understood and handled.

NOURISH-IBD interview study

This study by researchers at King's College London, is looking at food experiences of people living with Crohn's and Colitis. They want to understand how food affects daily life. Researchers also want to learn what support (if any) people have received for food and diet in Inflammatory Bowel Disease (IBD) and what help (if any) they would like. Researchers want to interview people living with Crohn’s and Colitis. The results from this study will be used to help develop digital support for food-related difficulties in people living with IBD.

Exploring Compassion in Young Adults with Borderline Personality Disorder (BPD)/Emotionally Unstable Personality Disorder (EUPD).

This research project, conducted by the Institute for Mental Health at the University of Birmingham, seeks to explore how challenging social experiences influence the ability of young adults with Borderline Personality Disorder (BPD) or Emotionally Unstable Personality Disorder (EUPD) to engage in acts of compassion. he study has been co-developed with experts by lived experience to ensure it reflects the perspectives and priorities of those with BPD/EUPD.

Help a peer/survivor researcher create an inclusive new understanding of experiences of crisis in people living with a diagnosis of personality disorder

This is a lived experience-led interview research project, designed by a PhD student at King’s College London. They hope to interview people, including from diverse backgrounds and with marginalised social identities, who are living with personality disorder diagnoses and who have recently been through a particularly difficult time with their mental heath. This could be described as an ‘intense period of distress’ or ‘crisis’.

Oldham Mental Health Lived Experience Forum member

North West

The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.

Oxfordshire Domestic Abuse Lived Experience Advisory Group

East of England

The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.

Macmillan Cancer Support Innovation Community

National

The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.  

Healthcare Quality Improvement Partnership (HQIP) – Service User Network (SUN)

National

Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.

The EPUT Buddy Scheme (Delivered by the Essex Partnership University NHS Foundation Trust

East of England

The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.

Does my body count? Exploring disordered eating in the trans community.

National

This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.

Cancer Prevention Group at King’s College London – can you help?

National

King's College London are looking for people to get involved in their Cancer prevention group. Can you help?

Looking for researchers with lived experience of psychosis

National

If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.

Are you partially sighted or blind? Do you live in the UK?

National

The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.

Edgehill University is looking for new members for their service user and social carer group

North West Online

The service user and carer group in the Faculty of Health, Social Care and Medicine at EdgeHill University are always looking for new members to join the group to help with all aspects of health and social care students training.