At Cancer Research UK (CRUK), the team is committed to putting people affected by cancer at the heart of their work. They want to hear from patients and carers/family members to make sure that their needs and opinions are at the centre of everything they do.
Shaping Our Lives is working with the University of Manchester and Manchester City Council on a research project called “Social Care Inequalities: Reablement Equity”. We are looking for five people to join our Advisory Group, who are aged over 18 and have lived experience of using adult social care services. You will meet together to talk about issues of trust and meaning in the use of adult social care data in research.
The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Alopecia, by participating in an online document review. They want to hear your experiences of living with this condition to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.
Hollye Kirkcaldy, a PhD student at the University of Bath, is researching the experiences and impacts of extreme heatwaves among Disabled people in the UK. Disabled people are disproportionately affected by the impacts of climate change-related extreme weather but have been largely overlooked in both research and policy to date.
The University of Liverpool are looking for volunteers to take part in an individual online interview exploring the process of recovery from psychosis and how mindfulness has been used in the recovery journey. As part of the interview, you will be asked to bring items which have some personal significance to your recovery experiences with you. This could include photographs, art, or objects. They hope this research will help them to gain more information about how recovery can be promoted for those experiencing psychosis.
The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, they work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.
The project focuses on adapting the Friendship Bench Zimbabwe, a successful, community-driven mental health initiative originally developed in Zimbabwe, to better support Black communities in London. The goal is to create a culturally responsive, accessible mental wellness programme that meets the specific needs of underserved communities.
Real is a Disabled People’s Organisation carrying out research into D/deaf and Disabled people’s quality of life across London using a research tool called the ‘Personal Outcomes Scale’. This explores what is important to you in different areas of your life, for example your social inclusion, health, and happiness. Over the two-year project, Real will interview 1000 people.
This study by researchers at King's College London, is looking at food experiences of people living with Crohn's and Colitis. They want to understand how food affects daily life. Researchers also want to learn what support (if any) people have received for food and diet in Inflammatory Bowel Disease (IBD) and what help (if any) they would like. Researchers want to interview people living with Crohn’s and Colitis. The results from this study will be used to help develop digital support for food-related difficulties in people living with IBD.
North West
The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.
East of England
The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.
National
The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.
National
Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.
East of England
The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.
National
This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.
National
Queen Mary University of London are looking for people to get involved in their Cancer Screening, Prevention and Early Diagnosis research. The Centre for Cancer Screening, Prevention and Early Diagnosis (CCSPED) research themes include existing screening approaches, potential early detection technologies, interventions to reduce cancer risk, psychological impact(s) of screening participation, and screening-related inequalities.
National
If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.
National
The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.
North West Online
The service user and carer group in the Faculty of Health, Social Care and Medicine at EdgeHill University are always looking for new members to join the group to help with all aspects of health and social care students training.
