NIHR Patient Engagement in Clinical Development (PECD) Service – Document Review – Bowel Cancer

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Into Bowel Cancer, by participating in an online document review. They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients.

NIHR Patient Engagement in Clinical Development (PECD) Service – Document Review – Inflammatory Neuropathy known as CIDP

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Inflammatory Neuropathy known as CIDP by participating in an online document review. They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients.

Patient Advisory Group member to Lymphoma Benefits and Risks Team at Oxford Population Health, The University of Oxford

The Benefits and Risks Team at Oxford Population Health is a group of doctors, researchers, and patient partners who work together to understand the best ways to treat lymphoma. They look at both the good and the harmful effects of different treatments, using real-life data from people across the UK. By studying this, they hope to help patients and their doctors make more informed choices about care. They are looking for more people with personal experience of lymphoma to join them, so that your voices and experiences can guide their research and make sure it truly meets patients’ needs.

Movers ‘n’ shakers are looking for participants to discuss physical activity experiences.

Movers 'n' shakers are a team of individuals from various sectors including Keele University, Edge Hill University and local community physical activity providers such as MCRactive and GM active who are working together to research physical activity and multiple-long term conditions. Through discussions with service users, they are hoping to learn more about people’s experiences with physical activity to help guide their research proposals.

The National Survivor User Network (NSUN) is recruiting trustees, including Chair and Treasurer

NSUN is a network of grassroots, user-led community groups and people who have lived experience of mental ill-health, distress, and trauma. They connect, support, and amplify the voices and work of members. As the only user-led national mental health charity, all of NSUN's staff members and trustees have lived experience, and their work is rooted in solidarity. NSUN is looking for trustees with a deep interest in how mental ill-health, distress and trauma connects with other social justice issues, such as disability and racial justice.

Join Designability’s team as a Lived Experience Advisor

Designability are looking for 6 to 8 people with lived experience of disability. Whether you’re a disabled person, an unpaid carer, or a parent or carer of a disabled child or adult, Designability would like to work with you to on designing and running a groundbreaking study on disability and inclusive design. You don’t need to be a researcher or expert to take part. Just someone with lived experience who wants to make a difference.

Research Study Participation- Eating Disorders: The Role of Pride and Shame in Help-Seeking and Motivation to Change

Courtney is a trainee clinical psychologist studying at the University of Liverpool and work in the NHS, who is conducting a study looking at the role of shame and pride in help-seeking and motivation to change in eating disorders/eating disorder symptoms. Courtney is hoping that, by speaking to people about their experiences and views, she can pull together themes to help better understand this. Courtney is hoping the findings will not only help overall understanding, but will also help services improve, possibly by improving early access and intervention so people can get help and support sooner. The study has been given NHS ethical approval.

Public Advisory Group for the Care Policy and Evaluation Centre (CPEC)

The Care Policy and Evaluation Centre (CPEC) at the London School of Economics are running a project called CASCID-2. This project aims to make UK social care data more accessible, inclusive, and useful for improving services and outcomes. They will do this by enhancing an online catalogue they have previously created.

Exploring Emotional and Relational Experiences of Psychosis – A Research Interview Study

A trainee counselling psychologist from University of the West of England is inviting participants to take part in a doctoral research study exploring the emotional and relational experiences of people who have lived through psychosis. The project aims to better understand how people make sense of their experiences and relationships before, during, and after psychosis. The study hopes to contribute to a more humane and person-centered understanding of mental health experiences.

Cancer Research UK Cancer Data Patient & Public Community

The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, they work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.

The Friendship Bench – London project

The project focuses on adapting the Friendship Bench Zimbabwe, a successful, community-driven mental health initiative originally developed in Zimbabwe, to better support Black communities in London. The goal is to create a culturally responsive, accessible mental wellness programme that meets the specific needs of underserved communities.

Research into disability and wellbeing in London

Real is a Disabled People’s Organisation carrying out research into D/deaf and Disabled people’s quality of life across London using a research tool called the ‘Personal Outcomes Scale’. This explores what is important to you in different areas of your life, for example your social inclusion, health, and happiness. Over the two-year project, Real will interview 1000 people.

Oldham Mental Health Lived Experience Forum member

North West

The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.

Oxfordshire Domestic Abuse Lived Experience Advisory Group

East of England

The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.

Macmillan Cancer Support Innovation Community

National

The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.  

Healthcare Quality Improvement Partnership (HQIP) – Service User Network (SUN)

National

Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.

The EPUT Buddy Scheme (Delivered by the Essex Partnership University NHS Foundation Trust

East of England

The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.

Does my body count? Exploring disordered eating in the trans community.

National

This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.

Cancer Screening, Prevention and Early Diagnosis research at Queen Mary University of London – can you help?

National

Queen Mary University of London are looking for people to get involved in their Cancer Screening, Prevention and Early Diagnosis research. The Centre for Cancer Screening, Prevention and Early Diagnosis (CCSPED) research themes include existing screening approaches, potential early detection technologies, interventions to reduce cancer risk, psychological impact(s) of screening participation, and screening-related inequalities.

Looking for researchers with lived experience of psychosis

National

If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.

Are you partially sighted or blind? Do you live in the UK?

National

The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.