NIHR Patient Engagement in Clinical Development (PECD) Service –Insight Session – Hives (also known as Chronic Spontaneous Urticaria)

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Hives (also known as Chronic Spontaneous Urticaria), by participating in an online insight session.  They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients.

Improving patient experiences of decision-making and consent in radiotherapy treatment for gynae cancer

GRACE (Gynae Radiotherapy Consent Enhancement) is a research collaboration between Lancaster and Bangor Universities, funded by the National Institute for Health and Care Research (NIHR). They are looking at ways of improving patient experiences of decision-making and consent in radiotherapy treatment for gynae cancer

Research Study Participation- Eating Disorders: The Role of Pride and Shame in Help-Seeking and Motivation to Change

Courtney is a trainee clinical psychologist studying at the University of Liverpool and work in the NHS, who is conducting a study looking at the role of shame and pride in help-seeking and motivation to change in eating disorders/eating disorder symptoms. Courtney is hoping that, by speaking to people about their experiences and views, she can pull together themes to help better understand this. Courtney is hoping the findings will not only help overall understanding, but will also help services improve, possibly by improving early access and intervention so people can get help and support sooner. The study has been given NHS ethical approval.

Experiences of making sense of unusual beliefs and/or perceptual experiences within secondary mental healthcare services

Matilda Fuller is currently studying a MSc Psychology conversion at the University of East London (UEL). She is working on her dissertation research project where she would like to talk to people about their experiences of sense-making of unusual beliefs/ experiences associated with distress within secondary mental health services.

Public Advisory Group for the Care Policy and Evaluation Centre (CPEC)

The Care Policy and Evaluation Centre (CPEC) at the London School of Economics are running a project called CASCID-2. This project aims to make UK social care data more accessible, inclusive, and useful for improving services and outcomes. They will do this by enhancing an online catalogue they have previously created.

Patient and Public Involvement (PPI) Network – The British Society for Immunology (BSI)

The British Society for Immunology (BSI) are recruiting a new Patient and Public Involvement (PPI) Network. The 15 network members will input into the work of the BSI such as public facing resources as well as potential projects their members (primarily research and clinical immunologists) are working on.

Exploring Emotional and Relational Experiences of Psychosis – A Research Interview Study

A trainee counselling psychologist from University of the West of England is inviting participants to take part in a doctoral research study exploring the emotional and relational experiences of people who have lived through psychosis. The project aims to better understand how people make sense of their experiences and relationships before, during, and after psychosis. The study hopes to contribute to a more humane and person-centered understanding of mental health experiences.

Cancer Research UK Cancer Data Patient & Public Community

The Cancer Data Patient & Public Community works together with Cancer Research UK and other organisations to improve the use of data in cancer research, aiming for improvements in detection, personalised care and treatments. By bringing together those affected by cancer and the wider public, the Community uses lived experiences to shape research and promote transparent and ethical data practices. Through public consultations and co-designing research, they work towards a future where data-driven discoveries lead to better outcomes for all affected by cancer.

The Friendship Bench – London project

The project focuses on adapting the Friendship Bench Zimbabwe, a successful, community-driven mental health initiative originally developed in Zimbabwe, to better support Black communities in London. The goal is to create a culturally responsive, accessible mental wellness programme that meets the specific needs of underserved communities.

Research into disability and wellbeing in London

Real is a Disabled People’s Organisation carrying out research into D/deaf and Disabled people’s quality of life across London using a research tool called the ‘Personal Outcomes Scale’. This explores what is important to you in different areas of your life, for example your social inclusion, health, and happiness. Over the two-year project, Real will interview 1000 people.

Oldham Mental Health Lived Experience Forum member

North West

The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.

Oxfordshire Domestic Abuse Lived Experience Advisory Group

East of England

The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.

Macmillan Cancer Support Innovation Community

National

The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.  

Healthcare Quality Improvement Partnership (HQIP) – Service User Network (SUN)

National

Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.

The EPUT Buddy Scheme (Delivered by the Essex Partnership University NHS Foundation Trust

East of England

The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.

Does my body count? Exploring disordered eating in the trans community.

National

This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.

Cancer Screening, Prevention and Early Diagnosis research at Queen Mary University of London – can you help?

National

Queen Mary University of London are looking for people to get involved in their Cancer Screening, Prevention and Early Diagnosis research. The Centre for Cancer Screening, Prevention and Early Diagnosis (CCSPED) research themes include existing screening approaches, potential early detection technologies, interventions to reduce cancer risk, psychological impact(s) of screening participation, and screening-related inequalities.

Looking for researchers with lived experience of psychosis

National

If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.

Are you partially sighted or blind? Do you live in the UK?

National

The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.

Edgehill University is looking for new members for their service user and social carer group

North West Online

The service user and carer group in the Faculty of Health, Social Care and Medicine at EdgeHill University are always looking for new members to join the group to help with all aspects of health and social care students training.