NIHR Patient Engagement in Clinical Development Service – Insight Session – Haemophilia in Children

The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Haemophilia in Children, by participating in a remote insight session.  They want to hear your experiences of caring for a child living with this condition, to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.   

Help a peer/survivor researcher create an inclusive new understanding of experiences of crisis in people living with a diagnosis of personality disorder

This is a lived experience-led interview research project, designed by a PhD student at King’s College London. They hope to interview people, including from diverse backgrounds and with marginalised social identities, who are living with personality disorder diagnoses and who have recently been through a particularly difficult time with their mental heath. This could be described as an ‘intense period of distress’ or ‘crisis’.

Experiences of people with psychosis in accessing sexual health support

People with psychosis and related disorders (schizophrenia, schizoaffective or bipolar disorder) experience more physical illnesses compared to those who do not have mental illness. As a result, mental health services are increasingly offering service users regular physical health checks and healthy living advice alongside usual care. However, sexual health among people with psychosis often remains overlooked.

Oldham Mental Health Lived Experience Forum member

North West

The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.

Oxfordshire Domestic Abuse Lived Experience Advisory Group

East of England

The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.

Macmillan Cancer Support Innovation Community

National

The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.  

Healthcare Quality Improvement Partnership (HQIP) – Service User Network (SUN)

National

Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.

The EPUT Buddy Scheme (Delivered by the Essex Partnership University NHS Foundation Trust

East of England

The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.

Does my body count? Exploring disordered eating in the trans community.

National

This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.

Cancer Prevention Group at King’s College London – can you help?

National

King's College London are looking for people to get involved in their Cancer prevention group. Can you help?

Looking for researchers with lived experience of psychosis

National

If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.

Are you partially sighted or blind? Do you live in the UK?

National

The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.

Edgehill University is looking for new members for their service user and social carer group

North West Online

The service user and carer group in the Faculty of Health, Social Care and Medicine at EdgeHill University are always looking for new members to join the group to help with all aspects of health and social care students training.