Exploring wellbeing and social group attendance in UK caregivers of people with severe mental illness (SMI)

Currently there is very little research on how to improve the wellbeing of people who are supporting someone with a severe mental illness (SMI). Help researchers from the University of Oxford Department of Experimental Psychology fill this gap. They are exploring whether wellbeing is related to attending different kinds of social groups (e.g. support groups, clubs and group activities), or not.

Patient and Public Involvement Session for uMed

uMed is a health research company, aiming to make research accessible to all. uMed works closely with GP surgeries to invite patients to studies and research opportunities that they maybe eligible to take part in. This Patient & Public Involvement session is to look at the way in which data is shared and the information that patients are given when being invited to a study.

Disabled Children’s Rights: Pilot Participatory Cataloguing Workshops for the Scope Archive

This project, led by Dr Vicky Long (Newcastle University) aims to develop new research into the history of disabled children’s rights. Your participation can help Long and her collaborators identify what insights can be gained into this history by examining materials from the archives of the charity, Scope. You can also help Long and her collaborators at Wellcome Collection identify how cataloguing Scope’s archive can make the collection more accessible for disabled people who want to use it.

NIHR Patient Engagement in Clinical Development (PECD) Service – Document Review – Inflammatory Neuropathy in Children

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Inflammatory Neuropathy in Children, by participating in an online document review.  They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients. 

Yung Adults who Grew up in Informal Kinship Care

This research is being conducted as part of Jade Donghy's Doctorate in Clinical Psychology at the University of Hertfordshire. The study explores the experiences of young adults who grew up in informal kinship care, meaning they lived full-time with relatives or close family friends without formal involvement from social services or legal arrangements.

Smoking, Vaping and ADHD

Nicola Lindson is a researcher at the University of Oxford. She is developing a research project about smoking, vaping and ADHD and would like people’s views to help shape it. This will help Nicola to be sure that she is doing research that is important to people and that is likely to be most useful. She has developed a short survey that it would be great if people with relevant experience could fill in.

Exploring the connection between language use and social experience of autistic adults

Laura Howey is a psychological wellbeing practitioner in the National Health Service (NHS) who works with autistic patients, and is completing their MSc in Clinical psychology at the University of Newcastle. They want to explore the connection between the languages people use, their confidence in social situations, and the connection to the social traits of autism, such as increased anxiety.

Carers’ perspectives on shared decision-making in risk assessment and management in mental health

A research team in the Division of Psychiatry at University College London is inviting adults who have provided, or are currently providing, unpaid support to someone living with a severe mental illness (such as psychosis, schizophrenia, bipolar disorder, or major depression) to take part in individual interviews. They are interested in informal/ unpaid carers’ experiences of being involved in conversations about risk and safety in mental health care.

Psychosis in Autism: The Role of Alexithymia

Researchers at the University of Oxford are interested in understanding the relationship between trauma, psychosis, and autism; including why unusual experiences occur, what maintains them, and how to support people who are distressed by these experiences. The findings from this study will be used to help shape early intervention services for autistic people who are experiencing early symptoms of psychosis.

Patient Advisory Group member to Lymphoma Benefits and Risks Team at Oxford Population Health, The University of Oxford

The Benefits and Risks Team at Oxford Population Health is a group of doctors, researchers, and patient partners who work together to understand the best ways to treat lymphoma. They look at both the good and the harmful effects of different treatments, using real-life data from people across the UK. By studying this, they hope to help patients and their doctors make more informed choices about care. They are looking for more people with personal experience of lymphoma to join them, so that your voices and experiences can guide their research and make sure it truly meets patients’ needs.

Oldham Mental Health Lived Experience Forum member

North West

The Oldham Lived Experience Forum is a group of people with mental health lived experience that want to actively contribute to the quality of support, prevention and recovery services across Oldham in the Living Well partnership and make them more inclusive, diverse and accessible.

Oxfordshire Domestic Abuse Lived Experience Advisory Group

East of England

The Oxfordshire Domestic Abuse Lived Experience Advisory Group (LEAG) is a group of survivors of domestic abuse in Oxfordshire.

Macmillan Cancer Support Innovation Community

National

The Innovation Community, a health initiative by Macmillan Cancer Support, brings together a diverse group of people living with or affected by cancer, sharing their experiences, skills and knowledge enabling Macmillan to shape their Innovation services and products.  

Healthcare Quality Improvement Partnership (HQIP) – Service User Network (SUN)

National

Healthcare Quality Improvement Partnership hosts a Service User Network (SUN) for people who are interested in contributing to improving the quality of healthcare services.

The EPUT Buddy Scheme (Delivered by the Essex Partnership University NHS Foundation Trust

East of England

The EPUT Buddy Scheme is a learning opportunity for students in any discipline to learn from lived or living experience of mental health.

Does my body count? Exploring disordered eating in the trans community.

National

This is a fifteen minute online questionnaire about your body image, body dissatisfaction, and eating and exercising behaviours and how gender might influence these.

Cancer Screening, Prevention and Early Diagnosis research at Queen Mary University of London – can you help?

National

Queen Mary University of London are looking for people to get involved in their Cancer Screening, Prevention and Early Diagnosis research. The Centre for Cancer Screening, Prevention and Early Diagnosis (CCSPED) research themes include existing screening approaches, potential early detection technologies, interventions to reduce cancer risk, psychological impact(s) of screening participation, and screening-related inequalities.

Looking for researchers with lived experience of psychosis

National

If you are a researcher with lived experience of psychosis, please consider taking part in this study. It is a qualitative study by the University of Bath investigating a psychosis social identity.

Are you partially sighted or blind? Do you live in the UK?

National

The Royal National Institute of Blind People (RNIB) Connect Voices network is a UK-wide online group hosted on Facebook.