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Becki Meakin, Colin Cameron, Michele Moore, Joanna Matthews

November 2017

This report aims to improve understanding of good and bad experiences of service user involvement in the commissioning, design, delivery and evaluation of public sector services, and to highlight the challenges faced by service users in negotiating these dual roles as a service user representative and as a recipient of services.
Listening to and respecting service users’ voices and perspectives is increasingly known to be an essential part of developing quality health and social care services.
In this user-led report, Shaping Our Lives aims to add new dimensions to this understanding by looking carefully at the impact on service users of becoming service user representatives. Drawing on the experiences of Disabled people who been called upon as ‘service user experts’ to share their views and take part in consultation exercises, this report probes a national paradox where service users are valued and taken seriously in the consultation context but are still subject to less respectful power relations in their day-to-day experiences as service users.
In partnership/with support of: Awards for All
Also read:
The guide for Disabled people on becoming involved
The guide for practitioners on involving Disabled people
Download report (pdf)Download report (docx)