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NIHR Patient Engagement in Clinical Development (PECD) Service – Document Review – Inflammatory Neuropathy known as CIDP

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Inflammatory Neuropathy known as CIDP by participating in an online document review. They want to hear your feedback to ensure that this, and future research, is as accessible as possible for everyone by designing it for patients, with patients.

 

Who they are looking for:

  • 4-8 individuals, aged over 18, living in the UK
  • People lived experience, as a patient or carer, of CIDP (chronic inflammatory demyelinating polyradiculoneuropathy) OR other inflammatory neuropathies (such as, Guillain-Barré syndrome, or multifocal motor neuropathy)
  • You will need to be able to access and use a word processing programme, such as Microsoft Word, to read the documentation and fill out a feedback form/forms
  • You will need to be comfortable with reviewing the documentation and sending back comments online

 

Expected commitment from participants:
This is an online review to comment on the content and design of patient-facing documents for a particular research study. The NIHR want to ensure that the documents are informative, accessible, engaging and fit for purpose, and that the language used is appropriate for potential participants and carers. Participants will have 10 days to review the documents and return their feedback.

 

Closing date to apply: Wednesday, 22nd October 2025

 

Documents will be sent via e-mail. The NIHR will endeavour to make these documents as accessible as possible, depending on participant requirements.

How to Apply

Please email: pecd@leeds.ac.uk

Involvement Payment Details

Participants may claim an involvement payment of £50 for this involvement opportunity.