NIHR Patient Engagement in Clinical Development Service – Insight Session – Post-Traumatic Headache in children

The National Institute for Health and Care Research is pleased to share an opportunity to be involved in the co-design of a commercial research study (that is a study funded by a pharmaceutical, biotechnology or medical device company) into Post-Traumatic Headache in children (which is a headache caused by a concussion or mild traumatic brain injury) by participating in a remote insight session.  They want to hear your experiences of living with this condition to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.

The NIHR is looking for up 6 adult individuals (age over 18), living in the UK, to participate in this opportunity.

They are looking for people who have lived experience, as a parent or carer, of caring for a child (aged between 6 years and 18 years) who has been diagnosed with post traumatic headache as a result of a mild traumatic brain injury (TBI) or concussion and who would be willing to share their experiences and management of this condition. You will need to be comfortable with attending an online discussion session through Zoom.

This is a two-and-a-half hour online session, which will be held through Zoom. The company will present their study, and participants will be asked questions around their condition, what they think of the study and what challenges they foresee for people taking part in the study. Participants will be identified by first name only and will not be expected to share any information they are uncomfortable sharing.

Documents will be sent via email. The NIHR PECD service will endeavour to make these documents as accessible as possible, depending on participant requirements.

The NIHR will send an accessibility form ahead of the event to enable us to meet the accessibility needs of all participants.

If you would like to take part in this opportunity, please complete this application form: https://forms.office.com/e/Bx1dTqhp6a
If you have any questions about the PECD Service or the planned activity, or have any difficulties completing the application form, please contact the NIHR PECD Service Coordinator by emailing pecd@leeds.ac.uk

The online meeting date has not yet been set for this activity, but it is likely to take place in February 2025.