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User groups: People with long-term health conditions

Region: National

Formerly known as the Lincolnshire Post-Polio Network, the Polio Survivors Network is a support network for Polio Survivors experiencing and living with post polio syndrome. We are polio survivors (not doctors) who, after years of stable functioning following recovery from polio (poliomyelitis, infantile paralysis), are experiencing new deterioration. In most cases these problems have been gradual and, whilst medically noted, most often are not explained or diagnosed/diagnosed correctly over many years. A few years ago the committee decided that having Lincolnshire in our title was restrictive when discussing issues with NHS departments in other areas of England. To better reflect the spread of our membership we became known as Polio Survivors Network.
PO Box 954, Lincoln LN5 5ER