Testing a draft resource to help prevent pressure ulcers at home
Pressure ulcers are patches of damaged skin and tissue. Some long-term conditions can put people at risk of getting pressure ulcers. Pressure ulcers can be serious, but most can be prevented. Researchers understand that preventing pressure ulcers while continuing to do the things that matter most to you can be challenging. This website offers practical advice, tools, and information to help prevent pressure ulcers at home. It may also be helpful if you support or care for people with long-term health conditions.
This website has been developed by people with long-term health conditions, such as Multiple Sclerosis, Spinal Cord injury, and Spina Bifida, together with carers, personal assistants, health professionals, charities and researchers.
Who the researchers are looking for:
Colleagues have developed the resource for different groups of people. They are interested in feedback from adults with a long-term, neurological condition, which limits movement, such as Multiple Sclerosis, Spina Bifida, Spinal Cord Injury, as well as carers and Personal Assistants.
Expected commitment from participants:
There are different ways to provide feedback including short questionnaires or taking part in an interview. If you look at the website on a desktop computer, then a pop-up box will appear with details of how to give feedback. If you look at the website on your phone, please visit the ‘feedback’ page. You can find the feedback page by clicking on the menu at the top right. You can also give feedback on the paper version. You do not need to know anything about research or pressure ulcers to tell researchers what you think.
You may wish to work through the website step-by-step or go straight to the sections that matter most to you. Sections include:
- What is a pressure ulcer?
- What puts you at risk of pressure ulcers
- Pressure ulcer prevention
- Developing a safe routine
- Spotting changes in your skin
- What to do if you notice changes
- Communication tips
A paper version of this information is also available. Please contact us on PUPstudy@leeds.ac.uk, 0113 343 0282 to request this.
How to Apply
The website can be accessed via: https://www.pressureulcer.co.uk/. Please contact the team on PUPstudy@leeds.ac.uk, 0113 343 0282 if you have any questions.
Involvement Payment Details
If a participant takes part in an interview, they will be offered a £30 voucher, as reimbursement for their time and out of pocket expenses. Please note that, according to the National Institute for Health and Care Research (NIHR), 'high street or gift vouchers may be treated as earnings and viewed by the benefits authorities in the same way as other forms of payment. These payments need to be declared in the same way as cash, cheques or bank transfers (https://www.nihr.ac.uk/about-us/who-we-are/policies-and-guidelines/public-contributor-reward-policy/payment-public-considering-involvement).